The organization must be committed to:

• Applicability (applying results) - meaningful consequences for patient quality of life and community health
• A focus on impact that we can measure
• Honoring commitments - “Doing what we say we will do”
• Ensuring clear expectations amongst stakeholders (including organizational leadership, personnel, and patients) and empowered, autonomous participation

What needs to be in place for the organization in general:

• Effective communication - internally and with patients/partners that is transparent and respectful
• Decision making process across organizational levels that is understood by all parties and represents a mutual effort

What needs to be in place when considering a particular research project:

• Adequate time and resources devoted to project (for both the organization and patients)
• Everyone (leadership and staff) understands the commitment to the funder and partners
• Discipline ourselves to ask the question “How does this strengthen patient empowerment, relationship with organizations, and treatment outcomes”

The organization must be committed to:

• Adequate number and diverse Latino patient representation (not just token)
• Inclusion of Latino patients’ perspective and insights throughout the partnership (not just attendance)

What needs to be in place for the organization in general:

• Systematic stakeholder discussion - a system to bring together community, patients, providers and researchers at a given time to determine research questions, involvement, agenda, etc.
• Ongoing collaborative partnerships - in harmony with mission and goals of person or organization - not just a one-time project
• A common understanding of what PCOR is - through education & training - both for the organization and for patients, partner organizations & researchers

What needs to be in place when considering a particular research project:

• Meaningful representation of Latino patients and perspectives in the discussion
• Patient influence - understand how Latino patient participation influences research study design and results

The organization must be committed to:

• An ongoing relationship between all involved partners
• Developing infrastructure for facilitating ongoing research

What needs to be in place for the organization in general:

• Realistic consideration of costs - both direct and indirect
• Commitment to long term engagement with a trusted partner
• Protected time and space for research activities

What needs to be in place when considering a particular research project:

• Alignment with organization goals - clear understanding of how the project fits within larger organizational goals and works toward them in broader timeline
• Defined plan for transitioning from project to next phase of partnership toward ongoing goals

The organization must be committed to:

• Applicability (applying results) - meaningful consequences for patient quality of life and community health
• Accountability and transparency with research process
• Improved “translation” - sharing findings in a way that allows them to affect the world around us

What needs to be in place for the organization in general:

• A plan for giving ongoing research updates to everyone involved and applying feedback received

What needs to be in place when considering a particular research project:

• The development of the proposal and implementation of the project includes insights from patients and stakeholders
• There is a plan for dissemination and implementation